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Stephanie Jude Kuleba
Beskrivelse: Site set up in memory of Stephanie to promote awareness of malignant hyperthermia, a rare genetic disorder.
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språk: English
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Born with Jeune Syndrome or Asphyxiating Thoracic Dystrophy in Louisville Kentucky. He underwent corrective surgery in San Antonio Texas, called the Titanium Rib ...
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Personal account about a daughter having Opitc Nerve Hypoplasia, Septo-Optic Dysplasia and had either a Congenital stroke or has schizencephaly.
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The PREP Program - A School and Resource Center for individuals with Down Sydrome, their families and educators. Located in Calgary, Alberta, established in 1988 ...
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Mowat-Wilson syndrome, support information, discussion site and forum for people who have been affected by Mowat-Wilson Syndrome.
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A small boy's health problems, possibly Leigh's Syndrome, and how his parents have helped him improve his quality of life.
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TOFS supports the families of children born unable to swallow. TOFS stands for Tracheo Oesophageal (esophageal) Fistula Support.
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Information on this rare chromosomal abnormality.
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Our Trisomy 18 Angel - Abigail Renee. This site was created to help other families who have been given a Trisomy 18 diagnosis.
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