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European Cystic Fibrosis Thematic Network
Beskrivelse: Creates a platform for scientists involved in fundamental CF research, for the more than 160 genetic diagnostic laboratories, for CF associations of families, patients and clinicians, legal experts and representatives of the ...
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språk: English
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ECFS, aims to achieve the best possible treatment and the highest quality of life for the patient with cystic fibrosis by the development and distribution of ...
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cystic fibrosis nurses: the international specialist group
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A guide to living with your sick or disabled child
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Latest information on Cystic Fibrosis, Services offered by Cystic Fibrosis Victoria, CF chat room and forum, free 65 Roses Magazine, CF shop, fundraising events.
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A resource for those affected by this disease. Includes details about the organization, fund raising, events and a newsletter.
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About a boy who has CF. A parent's personal weblog about the experiences of dealing with this chronic illness, and in depth information about CF.
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Cystic Fibrosis Canada
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Lungs for Life is dedicated to providing assistance and resource information to individuals and their families affected by cystic fibrosis and/or organ donation and ...
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